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September 18, 2020

A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SERGEY POVALIAEVSANDRA BETTENHAUSENJENNIFER KILENYBECCA WEISSMARY BETH MCCORD FLYNNMICHAEL SMITHDUSTIN AND CARLA RIOSDAMIEN GAFFNEYVINCE NEIL AND RAIN HANNAHMIKE BOYLAN, JRDR GREG AUNERDR HORACIO KAUFMANNDR ALESSIO DI FONZODR ZIV GAN-ORDR EDWIN GEORGEDR ANTHONY LANGPROFESSOR GLENDA HALLIDAYDR HENRY HOULDENDR WOUTER PEELAERTSDR PETER LEWITTDR GUILIA LAZZERIDR JEFFREY KORDOWERDR PATRIK BRUNDINDR ALEXANDRA PEREZ SORIANODR GARY ZAMMITDR CARLOS COSENTINODR PRATIK BHATTACHARYADR MICHAEL SCHLOSSMACHERDR OYBEK TURGUNKHUJAEVJEANNINE BRAGGMIGUEL ANGEL DEL PINO ESTEBANCRAIG STEVENSBECKY AND MIKE STANDEFERDANIEL TENEVMONICA REMARTINIREV'D STEPHEN DONALDKYM THOMPSONSUSAN YOUNGROSEMARY DU MONTOLIVIA ROMANODESIREE FISHDONNA YOSTANDY MACINDOEVALERIE GARNEAUJOEL PHILIBERTKELLY MURPHYMARGARET MACLACHLANIAN MACLACHLANJENNY KILKENYBECCA WEISSMARY T MEAGHERKAREN FORHANCHERIE MILLERJOSHUA LEE CALVERTSTEPHEN DONALDPATRICIA BOYLANSHANE VALICENTIWIKIWIRA POKIHAARNETTA MICHELLE STEPTOEPAM SMITH HOWELLSCHERYL KATZ WEISSLINDA EPPELHEIMERHANNAH...

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September 18, 2020

MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the difficulties in diagnosing this disease and highlights the urgent need for disease specific biomarkers. Defeat MSA Alliance would like to thank the following for their help: Cure Parkinson’s UK, Professor Raphaella So, Ms. Beverly Wilson and Defeat MSA Research Advisor Dr. Wouter Peelaerts. https://youtu.be/NudEmzJz-S8 ...

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September 18, 2020

FOR IMMEDIATE RELEASE - 7/20/20 DETROIT, MI—Defeat MSA Alliance announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The consortium, officially named “Defeat Multiple System Atrophy United International,” is comprised of six diverse organizations that span the globe. Each member organization is operated solely by volunteers, without relying on salaried staff or contracts for services from profit driven businesses. Consortium members include: Defeat MSA Alliance – USADefeat Multiple System Atrophy – Vaincre L'Atrophie Multisystématisée - CanadaDefeat Multiple System Atrophy – Australia and New ZealandCombattiamo l'Atrofia Multisistemica – ItalyAsociación Síndrome Shy-Drager Atrofia Multisistémica – SpainDefeat MSA Awareness Shoe, A Global Awareness Campaign – USA The leaders of the consortium’s six charities have entered into a cooperative...

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September 18, 2020

Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from sitting to standing, which causes fainting or dizziness), difficulty regulating body temperature, impaired cardiovascular and respiratory function, and a loss of bladder or bowel control. In addition, patients may also have parkinsonian symptoms (difficulty moving their arms and legs, poor balance, slow movement, and sometimes tremors) or trouble with muscle coordination, which results in difficulty with chewing, focusing their eyes, or speaking. The name multiple system atrophy was first proposed in 1969 by J.G. Graham and D.R. Oppenheimer as a reclassification...

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July 19, 2020

DEFEAT MSA ALLIANCE is very pleased to announce the first host charity showing of “A Day for Susana” (Um Dia Para Susana) on the evening of SATURDAY, SEPTEMBER 19, 2020 via online streaming!  The event will also include a live chat with filmmakers, Giovanna Giovanini and Rodrigo Boecker (Club Soda Films)  and with MSA warrior and world paralympian champion, Susana Schnarndorf. This is the first feature length documentary film about someone with Multiple System Atrophy. THIS IS AN EVENT NOT TO MISS! This amazing film will be streamed live as part of the 2020 Defeat MSA United Virtual Conference. This year’s conference, “MSA: A Path Forward, ” will bring together a wide spectrum of patients, caregivers, clinicians, researchers, allied professionals and...